Caring for someone with IgG4-RD can be rewarding, but it can also be challenging. Caregivers often juggle appointments, daily needs, and emotional support while trying to take care of themselves, too. This page offers practical tips, self-care advice, and trusted resources to help you feel supported every step of the way while caring for your loved one.
Caring for someone else is easier when you also care for yourself.
Explore these organizations for more support:
While these other organizations are not owned or controlled by Amgen, and Amgen is not responsible for their content, you may find them helpful.
Rare Caregivers Guidebook
A comprehensive resource for those caring for someone with a rare disease. Developed by Global Genes, which provides support and guidance for the unique challenges of rare disease caregiving.
Caregiver Resources for Patients With Rare Diseases
If you are caring for a person with a rare disease, you know dedication, time, and patience are required. You also know that practicing self-care is a critical part of caregiving. Find the educational and financial resources to support your efforts here.
Patient Helpline Resources
Provides crucial navigation services for patients, caregivers, and their families. From guiding them through complex healthcare challenges like transportation, financial services, insurance, access to medicine, and more, the goal is to help people get the care and treatment they need to live a fulfilling life.
Family Caregiver Alliance
A national non-profit organization that provides support, information, and resources to family and friend caregivers through CareNav®, a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey.
Talking About IgG4-RD: Caregiver’s Conversations
Caregiver’s Conversations offer powerful insights, practical advice, and heartfelt reflections from people living with the disease, caregivers, and experts that can help patients feel less alone on their journey.